Thank you, from another victim of Pump Head ...

In October of 2007, I had to undergo an open heart surgery and like you developed pump head which to this day continues to progress. To some it is also known as bypass brain! Cute little names for something that completely turned my life inside out.

I might have come to this dilemma in a different way than you ( I was a victim of gross neglect at the hospital that was suppose to stabilize me and transport me to another hospital for a stint ) but like you I am a pump head and must deal with it.

Sometime, I wished I knew how to cope better with this, but I do the best I can. To some that do not understand, we notice the changes. It’s simple really. What we do not notice our families certainly will. I watched how my family reacted to me. My sons can not believe some of the things I say, jumbling of words, constant forgetfulness or my sudden outbursts.

I wish it was a mandatory part of the preparation process before surgery that they tell us about this condition. I have been speaking openly more about it to others. Like you, I had to learn what this was for myself and then I confronted my doctors only to have them validate to me what I already knew from my own research.

Thank you for the post it has helped me more than you know. There are not many that speak so openly about this.

Kindest Regards,
Tina